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Depending on which nurse I have is how independent I am of a morning. This morning, I got myself out of bed, on to the wheelie walker, on to the loo, into the shower, showered myself, off the shower chair on to the wheelie walker by myself - tho nurses present. So that's progress!
Down to OT and Rosemary left me to work thru and cos I knew by then I had physio at 10.30, I concentrated on the ones Tracey classes as "most important". Penny came to talk to me and she is coming down to the test (it's the nose scope look-see this arvo and I gather the barium test is on too). Penny said we could take some food I wanted to try with us so we agreed we'd take some egg sangers if they were on the menu at lunch - now that would make a big difference, just bread with the soup and sangers for lunch, so hope I pass that one!!
I was 10 mins late for physio but Praline wasn't ready for me (as I knew she wouldn't be - hee) so no harm done. She took me thru my paces - am standing up with her assistance really easily now and we don't need a second person so that is pleasing (but I want to do it by myself). I walked for 4 laps of parallel bars with only the one hand on the rail and could have done more but she had other plans - did the foot weights that Nick showed me on Friday and also some more arm/tricep exercises and finished off with a 60m walk, so quite a workout.
I take myself back upstairs but got waylaid at the lift by the rain - was all cloudy again and just starting to come down pretty heavily. I sat outside in blissful contemplation for the 30 minutes before lunch - :) - was really raining with that lovely cool breeze storms bring with the occasional flurry spraying me: I did so enjoy it and I was on my own like an adult person! I felt like I'd been let off the leash for the first time.
Back up to lunch on time - got the egg sangers - mushroom soup today so I had that and then back to my room until time to get the shuttle.
After quite a wait in ENT - the registrar got called to surgery - she came back up to get the test started. I managed to handle the scope going down this time around (in hospital, I couldn't stand it for long at all) and also the whole time they were trying things: the sangers were no good: too soft and gluggy for me to swallow - awww! Handled the diced peaches okay tho it took about 5 really hard swallows to get rid of most of it but I was still not swallwing all of it. The blue milk (the blue is the barium they use so they can see where it's going) was the worst because I aspirated a small bit of it - so all in all I didn't so really well at all - it was the speechies who said all was not lost, it is very hard with the nose scope in to swallow properly or use the "process" to make the food go where you want it to but they wanted to have a real good look around if they could so they were quite happy. The barium test is tomorrow and I don't aspirate anything with that, so they'll decide tomorrow about bread, toast, sandwiches (NOT egg!) -- but I can keep trying all sorts of things if I think I can handle them, even roast chicken - woohoo!
Didn't get back up here until 4.10 pm - long afternoon - probably be quicker tomorrow from past experience - email from Vonnie: Karrl's birthday on Wednesday, so she'll be here tomorrow nite instead. She didn't say anything about Boxing Day so don't know if I'm having brunch/lunch with anyone or not!! Was wiped out - and weepy - from scope test so I had a bowl of soup in my room and, I'm told, missed out on Macaroni Cheese - pooh.Off to bed about 7.30 - lovely chilly, rainy night - so I have the WP Girls' pyjama jacket on - so am a purple spotted vision!!
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